About us
Breathe for Bea – this is a new organization, in memory of a wonderful lady, Ashley “Bea” Briggs, who passed away in 2017. They offer scholarships, financial assistance, transplant assistance and send out hospital kits.
CysticLife.org – is a social network specifically made for people with CF, their families and their friends. Members can post blogs, ask questions, maintain a profile, search the member database and contact others.
Cystic Fibrosis Worldwide – Cystic Fibrosis Worldwide (CFWW) is dedicated to improving quality of life and life expectancy for persons living with cystic fibrosis globally.
The Cystic Fibrosis Foundation – world’s leader in the search for a cure for cystic fibrosis.
The American Lung Association – is the leading organization working to save lives by improving lung health and preventing lung disease through Education, Advocacy and Research.
The United States Adult Cystic Fibrosis Association – provides a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it. It also offers a forum for CF adults to communicate with each other.
The American Association for Respiratory Care – association for respiratory care practitioners.
The Blooming Rose Foundation – was created to give hope to families immediately following diagnosis, fundraise to positively reach a vast array of individuals, and offer an online resource for individuals, families, and friends in the CF community.
Cystic-L a free email service dedicated to the exchange of information and support specific to cystic fibrosis.
Cystic Fibrosis Lifestyle Foundation – to provide Recreation Grants that directly assist CF patients with recreation costs as a form of physical, psychological and social therapy.
CF Podcast – Jerry Cahill (50+) shares stories on how he, and others with cystic fibrosis, are LIVING, BREATHING & SUCCEEDING with CF.
Tips for CF Parents – Provides tips and resources for parents of children with CF. Lisa C. Greene is the mom of two kids with CF, a parent coach and co- author with Foster Cline MD of the award-winning Parenting Children with Health Issues.
Cystic Fibrosis Worldwide – Cystic Fibrosis Worldwide (CFWW) is dedicated to improving quality of life and life expectancy for persons living with cystic fibrosis globally.
Lets Rock Cystic Fibrosis – Letsrockcf.org is where all of your Rock CF Foundation news and events are posted! The Rock CF Foundation utilizes the arts, entertainment, fashion and fitness to support research initiatives and heighten public awareness in the fight against cystic fibrosis.
CF Living – An educational site that offers information and support for those living with or caring for someone with cystic fibrosis.
Foundation Care – a full service retail pharmacy serving cystic fibrosis patients nationwide. The pharmacy not only provides a full line of retail products and supplies, but they also compound specialty inhaled medications, distribute nebulizers with eFlow technology.
Travis Flores Children’s Foundation – An organization dedicated to providing an essential technological need (Netbooks and laptop computers) to chronically ill children and young adults, including CF patients, who endure frequent hospital stays.
Cystic Fibrosis Medicine – This dedicated website on cystic fibrosis has been developed to provide clinical information on all aspects of cystic fibrosis. The site is aimed at health care professionals, individuals with cystic fibrosis and their families.
The European Cystic Fibrosis Society (ECFS) – Aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis.
The CF Care Fund – A charity that works with doctors and other health professionals to assist CF patients whose financial needs prevent them from obtaining the care they need.
Daily Strength – Online support group with over 650 members.
Hill-Rom – Manufacturer of The Vest® Airway Clearance System.
WebMD – A leading source for trustworthy and timely health and medical news and information.
CHEST – the official publication of the American College of Chest Physicians (ACCP).
Cystic Fibrosis Canada – Canadian Support Organization for people living with CF.
Medical News Today – The latest Cystic Fibrosis News articles published daily. Includes news on Cystic Fibrosis (CF) or Mucoviscidosis.
Science Daily – Cystic Fibrosis Research News.
Breathe 4 Tomorrow Foundation – A non profit organization dedicated to helping families and individuals in need due to Cystic Fibrosis.
The Cystic Fibrosis-Reaching Out Foundation – Information and support for CF patients and families.
Cystic Fibrosis Services Pharmacy – Specialty pharmacy for CF medications, patient advocacy and reimbursement support. Owned by the Cystic Fibrosis Society.
Pleuralmesothelioma.com – Organization that provides free information, resources and support to help you understand, fight and overcome mesothelioma.
MesotheliomaFund.com – Mesothelioma is associated with exposure to asbestos. This organization helps mesothelioma victims obtain compensation from asbestos trust funds.
Cerebralpalsysymptoms.com – Organization dedicated to raising awareness globally for cerebral palsy and other birth injuries.
The Mesothelioma Guide.com – educational & informational website for mesothelioma patients and family members.
Mesothelioma Veterans Outreach – a site dedicated to information and services for Veterans with Mesothelioma.
Organizations that support patients with Medical Equipment:
North Hampshire Medical Fund – Organization in Great Briton that assists in acquiring medical equipment for patients.